The Central IL Fragile X Resource Group was established in 2006 by parents Scott and Holly Roos of Canton, IL. Most well known for their annual spring “Walk for Fragile X” event the group also hosts a variety of other activities all year long.

Holly took on the position of leader of the Central IL group until the fall of 2011 when Amy Zeleznik became the co-leader of the group.

The group now looks forward to reaching more families with the joint effort of these two moms to provide support and education, create awareness, promote advocacy and actively fund raise to help the families of Central IL and nationally affected by Fragile X-associated Disorders.